Best FTD Resources
What If It's Not Alzheimer's |
Chapter 9 Chapter 16 |
Association of Frontotemporal Dementia (Website) |
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Pick's Disease Support Group (Website) |
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University of California, San Francisco (Website) |
Family Caregiver Alliance (Website) |
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National Institutes of Health (Website) |
Other Internet Articles
The National Institute on Aging funds Alzheimer's Disease Centers (ADCs) at major medical institutions across the U.S. This also shows a current map of all the locations http://www.nia.nih.gov/Alzheimers/ResearchInformation/ResearchCenters/ |
The U.S. offers a web site called ClinicalTrials.gov. The link below will show all studies that is currently recruiting for Frontotemporal Dementia patients. This web site seems to include European studies too. http://www.clinicaltrials.gov/ct/search?term=frontotemporal+dementia&submit=Search |
List of Research Centers
| United States (East of the Mississippi River) |
| United States (West of the Mississippi River) |
| Canada |
| United Kingdom Area |
| Australia |
To see a map of all the Research Centers listed click here. You will need to have Javascript turned on in your browser like Internet Explorer, Netscape or Mozilla.
United States, East of the Mississippi River (Research Centers)
| John Hopkins Medicine | Contact Name Location Web site This clinic is dedicated to the care of patients and families with FTD. The clinic evaluates new patients suspected of having FTD and also follows FTD patients longitudinally. Opportunities for research participation exist. Patients or families with FTD who are interested in seeing Dr. Blass for clinical care or for involvement in research can contact him at 410-502-2981. Verified Date : 12/16/2005 |
University of Pennsylvania
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Contact Name Location |
University of Michigan (Michigan Alzheimer's Disease Research Center) |
Contact Name Location Web site |
| Mayo Clinic in Jacksonville, Florida | Contact Name Location Web site |
Mayo Clinic in Rochester Minnesota
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Contact Name Location Web site |
Northwestern University
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Contact Name Location Web site |
| University of Alabama | Contact Name Location Web site |
United States, West of the Mississippi River (Research Centers)
University of California, Los Angeles |
Contact Name Location When you call Jill, you will probably have to leave a message and she will get back in a day or two. Very busy person. We had a good experience here and we had talked with others. Verified Date : 12/16/2005 |
University of California, San Francisco
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Contact Name Location Web site Cathra Halabi
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| University of Washington (Alzheimer's Disease Research Center) |
Contact Name Location Web site We are involved in research; we are not a clinic diagnosing FTD. For +11/10/06 updated(12/19/06)
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University of Southern California
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Contact Name Location Web site
Project 5: Frontotemporal Dementia Consortium The purpose of this project is to establish a standardized database and data collection system for the study of patients with frontotemporal dementia (FTD) through a Consortium of the ARCCs. Frontotemporal dementia patients will be compared to conventional AD patients (CAD), AD patients with executive dysfunction (frontal variant AD; FAD), and healthy controls on neuropsychological tests and caregiver measures. USC Site: CAD and FAD patients will be evaluated at USC. Inclusion Criteria: Subjects must be between the ages of 35-80 and meet criteria for either FTD, AD, or normal control. Each participant must have a reliable informant who has frequent contact with the subject and is available to provide information about the subject’s functional abilities to be included in the study. FTD and AD patients will also be required to have a caregiver that can provide behavioral information on the subject. The informant and caregiver may in some cases be the same person. Because the normal controls will not have caregivers the informant will be used for both the functional and behavioral assessments. Subjects will be asked to have their informant and/or caregiver accompany them to their research visits or for an alternative method of contact (i.e. telephone, mail, etc.). |
| UCI Institute for Brain Aging and Dementia | Contact Name Location Web site +11/17/07 |
| Mayo Clinic in Scottsdale, Arizona | Contact Name Location Web site |
| Center for BrainHealth®, part of The University of Texas at Dallas' School of Behavior and Brain Science | Contact Name Location |
Canada (Research Centers)
The Rotman Research Institute
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Contact Name Location Web site |
United Kingdom (Research Centers)
University of Manchester  |
Contact Name Location Web site http://www.psych-sci.manchester.ac.uk/staff/MattLambonRalph +12/14/06 |
Australia (Research Centers)
Contact Name Location Web site |