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What is Dementia - Genetics

The information on this page is for reference and educational purposes. There is no substitute for seeing a doctor.
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Jennifer M. Farmer discusses the role of Frontotemporal Dementia (FTD) genetics in Chapter 3 of "What If It's Not Alzheimer's." She recommends researching at least three generations of relatives and on page 56 discusses the different medical information to obtain on relatives. Jennifer takes the time to explain how DNA works and how mutations can occur.

Depending on who's report you read, a person with FTD (pFTD) can have a 10% to 40% chance of developing FTD via genetics. At the 5th FTD Conference they were leaning more toward the 40%. Either the mother or father can pass down the gene.

 

Best FTD Resources



What If It's Not Alzheimer's
© 2003 by Lisa Radin and Gary Radin

Chapter 3
Pages 55-65

Association of Frontotemporal Dementia (Website)

Provide a link to "The Genetic Alliance"
The Genetics of FTD: Should you worry?
(AFTD also has the document above in a brochure too)
Researchers Identify the Protein that Causes Some FTD...
New Genetic Defect Identified in Some Cases of Inherited FTD
Google Video - Genetics of FTD

Pick's Disease Support Group (Website)

Is Dementia Inherited?

University of California, San Francisco (Website)
Family Caregiver Alliance (Website)

No information was found on this website about this topic.

National Institutes of Health (Website)

Scientists Discover New FTD Gene +11/25/06 (Christine H.)

 

Other Internet Articles



Called Inherited frontotemporal dementia in nine British families associated with intronic mutations in the tau genes, from Brigham and Women's Hospital

lansbury.bwh.harvard.edu/Literature/Review/BD.htm

Another article from the Journal of Neurology called "Inherited frontotemporal dementia in nine British families associated with intronic mutations in the tau gene."

brain.oxfordjournals.org/cgi/content/full/125/4/732

At Columbia University, Jennifer Williamson-Catania, M.S., talks about the genetics of Alzheimer's and FTD. The article, more for doctors, is interesting. On page 5 the author talks about FTD, though the article is mostly about Alzheimer's. .

http://ci.columbia.edu/c1182/web/sect_8/c1182_s8_1.html

Genetic Alliance is an international coalition comprised of more than 600 advocacy, research, and healthcare organizations that represent millions of individuals with genetic conditions and their interests.

www.geneticalliance.org

The GeneTests website is a publicly funded medical genetics information resource developed for physicians, other healthcare providers, and researchers, available at no cost to all interested persons.

www.genetests.org/

The National Society of Genetic Counselors is composed of healthcare professionals with graduate degrees from a variety of fields including biology, genetics, nursing, psychology, public health, social work, and possibly other fields. Their website provides support, investigation, interpretation, analysis, and other information regarding families with possible birth defects, genetic disorders, and risk for a variety of inherited conditions.

www.nsgc.org/

Frontotemporal Dementia with Parkinsonism-17

http://www.geneclinics.org/profiles/ftdp-17/details.html




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